Hello all:

Hello all:

On Saturday, September 23th we are participating in the 19th Annual Napa Valley Event to Defeat ALS. We will be raising funds for the ALS Association, which provides care services; funds global, cutting-edge research; and supports important public policy initiatives.

Miles has had ALS for 9+ years. Miles' motor function has slowed a bit more and his verbal skills have continued to decline. He can still make himself understood given his devices and his determination that he will continue to communicate. We just sold our RV and took our first road trip without it.  Success!! We stayed with awesome friends who set Miles up in every possible way, including setting up an outdoor shower!  We then stayed in an ADA cabin (other friends in their own cabins) and it all worked great. Miles remains a happy person, grateful for the beautiful life he has had and continues to have.  Much of that feeling of gratitude is due to being buoyed by his amazing support system.

As always, we would love to have you part of team (S)Miles this year. This team is such a boost for all of the McConnell/Breens. If you cannot be with us on ride day you can still be a part of the team and help to fund raise or you can donate funds.  Raising awareness of the urgency to find treatments and a cure is our goal. We know that you all have different goals and different charities you want to support. We understand if your goals this year go beyond Team (s)Miles. Know that there is never any pressure to donate or ride.

We are happy to report that Last year Team (s)Miles raised over $100,000 for the ride/walk once again and we hope to continue with that goal into the future. All your support means so much to Miles, Spence, Jay and me and you are all so appreciated.

We send you love and (s)Miles,
Dubie, Miles, Spencer and Jay