Welcome to the page of
Ronenn Roubenoff
Personal Amount Raised
$10,870.10
Personal fundraising goal: $1,500.00
Achievements
$150
$750
$3,000
$7,500
$10,000
Welcome to My Personal Page
Why I Ride...
As you know, my wife Barri died of ALS last year, and her brother Michael a year earlier. Now it is attacking their sister Lisa. And the same genetic defect (C9orf72) probably killed their mother Karen, as it causes dementia as well (Karen died of Covid-19 in March 2020 in a Chicago nursing home). Thanks to my dear friends from high school who have rallied around us during this terrible time, I will be participating in the Golden West Chapter of The ALS Association's Napa Valley Ride to Defeat ALS and Walk. I ride to support those affected by Lou Gehrig's Disease and to spread awareness for the urgency to find treatments and a cure.
What is ALS?
Often referred to as Lou Gehrig's disease, amyotrophic lateral sclerosis (ALS) is a progressive, fatal neuromuscular disease that slowly robs the body of its ability to walk, speak, swallow and breathe.
Why We Need Your Help
Every 90 minutes a person in this country is diagnosed with ALS and every 90 minutes another person will lose their battle against this disease. ALS occurs throughout the world with no racial, ethnic, or socioeconomic boundaries.
- The average life expectancy of an ALS patient is two to five years from the time of diagnosis.
- Every 90 minutes someone in this country is diagnosed with ALS, and every 90 minutes another person will lose their battle against this disease.
- ALS can strike anyone. Presently there is no known cause of the disease. Someone you know or love may die from ALS unless a cure is found.
- Caring for a loved one with ALS costs on average of $200,000 each year.