As some of you know, my brother, Joe, was diagnosed in November 2010 with ALS. I'm at a loss to describe how it has affected our family. The best I can do is say that, for us, it's brought us even closer together and given me a different percspective on life and what really matters.
This disease is costly: physically, mentally, and monetarily. Not all of the money raised goes towards research. A portion goes to help families in monetary crisis due to this disease. A few years ago my father met a woman in the parking lot of an ALS clinic that broke down in tears from him simply helping her move her husband from his wheelchair into their car and putting the wheelchair in the trunk. They had no one to help, she said. She had to quit her job to care for her husband and they had nothing. I think about this couple a lot and the difficulties they must be facing every.single.day.
WHY I WALK
Thank you for helping me reach my Walk to Defeat ALS® fundraising goal! The Walk to Defeat ALS® is very important to me, as it raises funds to support those affected by ALS and to spread awareness of the urgency to find effective treatments and cures.
Amyotrophic lateral sclerosis (ALS) is a progressive, fatal neuromuscular disease that slowly robs the body of its ability to walk, speak, swallow and breathe. The life expectancy of a person with ALS averages 2 to 5 years from the time of diagnosis. ALS can strike anyone, and presently there is no known cause or cure.
A person with ALS becomes physically locked-in as the disease progressively paralyzes the body. The key to UNLOCK ALS begins with us.
Please consider walking with me or sponsoring me. With your help, we will be able to make a difference in the lives of people affected by this disease. Click or tap on VIEW MY TEAM above to join, or on DONATE to make a donation.
The past few years have brought incredible advancements in ALS research, expanded access to care for people living with ALS, and enabled legislation that impacts the quality of life of people with ALS and their families. We can't stop now! It is only together that we will defeat ALS!