These words exploded with fury in my head. My sister-in-law, Susan, touched my hand and reminded me to Breathe. This was a good suggestions as I was unaware of how lightheaded I'd become. I was familiar with ALS and what I knew was devastating. From that moment on, I took one breath at a time. I asked questions, read medical journals, attended educational groups and webinars. Breath by breath, day by day, I began to wrap my head around this shocking new reality for David and for me. One thing was clear, David and I were not going to let ALS get in the way of our Creating a Meaningful Life.
We made many changes in our lifestyle to adapt to the disease's impact on David's abilities. What hasn't changed is our commitment to one another. What grew is a passion for finding treatments and a cure.
Time has passed and we've found our stride of activism. David and I are research Ambassadors for ALS through NEALS, the Northeast ALS consortium. Thankfully, David's among the lucky as his disease is moving very slowly. Since diagnosis, new treatments have been developed to slow the progression even more. With your help we are fundraising to end this cruel disease. Like tortoises, slow and steady will win the race! Won't you join us so that one day no one will hear those terrifying words, "You have ALS."
(Proud wife of David Buseck & member of Team Tortoise)