On July 24, 2023 my worst fears were confirmed when I was diagnosed with ALS.  For over a year I had wandered through the wilderness and isolation of my increasing symptoms that no one could explain. By March tests were being ordered to “rule out ALS,” but no one wanted to talk to me about it.  I was being passed from doctor to doctor and fighting to get the testing that might provide answers.  I had to become a strong advocate for myself to get appointments, physical therapy, insurance coverage and just someone to point me in the right direction. July 24th might have been one of the worst days in my life, but on August 10th, I met my care manager from ALS Golden West and no longer felt like I was navigating ALS alone.  

Amyotrophic lateral sclerosis (ALS) is a progressive, fatal neuromuscular disease that slowly robs the body of its ability to walk, speak, swallow and breathe. The life expectancy of a person with ALS averages 2 to 5 years from the time of diagnosis. ALS can strike anyone, and presently there is no known cause or cure.  This is my reality.  This is Sam’s reality as my devoted, loving husband and now - caregiver.

Please consider sponsoring our team or joining Sam in the 2023 INLAND EMPIRE Walk To End ALS on October 22nd. With your help, we can make a difference in the lives of people affected by this disease. Click or tap on VIEW MY TEAM above to join our team, or click on DONATE to make a gift today.

As a professional fundraiser, this is the first time I have engaged in raising money for anything so personal. I cannot tell you how immeasurably helpful it is to have someone to call when I don’t know what to do or to provide information and services I never knew I’d need. The Golden West Chapter of the ALS Association has helped me with the devastation of this diagnosis. ALS Golden West also advocates for legislation that impacts drug approval and services to aid families—providing hope in a hopeless situation. 

I included a picture from our wedding where everyone was gathering to lay hands on us and bless our marriage. I continue to feel this love from our friends and family every day, and it helps me fight through the fatigue, swallow my pride, and let others help me.  With your support I put a brace on my leg and foot that no longer work, take that damn walker and keep going.  

Thank you for your support!

Sharalyn

P.S.

The past few years have brought incredible advancements in ALS research, expanded access to care for people living with ALS, and enabled legislation that impacts the quality of life of people with ALS and their families. We can't stop now! It is only together that we will defeat ALS!